Hepatoblastoma (disorder)
Year Started: 1998
Specific paediatric solid tumour sample collection
- Access:
- Open to applicants
- Type:
- Disease specific
- Status:
- In progress
- Consent restrictions:
- No restrictions
Associated Data Type | Procurement Timeframe |
---|---|
Biomarker datasets | 0 - 3 months |
Clinical records | Immediate |
Followup records | 0 - 3 months |
Freezer temperature logs | Immediate |
National registries | > 6 months |
Pathology records | Immediate |
Primary care records | 0 - 3 months |
Treatment records | 0 - 3 months |
Male
Young child (2 - 6 years)
101 - 500 donors
Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
---|---|---|---|---|---|
DNA | -60°C to -85°C | N/A | Not applicable | 11 - 25% | |
Tissue specimen | Surgical procedure (procedure) | -60°C to -85°C | N/A | Affected | 26 - 50% |
Tissue specimen | Surgical procedure (procedure) | RT | Paraffin | Affected | 11 - 25% |
Hodgkin's disease (disorder)
Year Started: 1998
Specific paediatric solid tumour sample collection
- Access:
- Open to applicants
- Type:
- Disease specific
- Status:
- In progress
- Consent restrictions:
- No restrictions
Associated Data Type | Procurement Timeframe |
---|---|
Biomarker datasets | 0 - 3 months |
Clinical records | Immediate |
Followup records | 0 - 3 months |
Freezer temperature logs | Immediate |
National registries | > 6 months |
Pathology records | Immediate |
Primary care records | 0 - 3 months |
Treatment records | 0 - 3 months |
Male
Child (6 - 12 years)
101 - 500 donors
Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
---|---|---|---|---|---|
DNA | -18°C to -35°C | N/A | Not applicable | 100% | |
Tissue specimen | Surgical procedure (procedure) | -60°C to -85°C | N/A | Affected | 26 - 50% |
Tissue specimen | Surgical procedure (procedure) | RT | Paraffin | Affected | 26 - 50% |
Retinoblastoma (disorder)
Year Started: 1998
Specific paediatric solid tumour sample collection
- Access:
- Open to applicants
- Type:
- Disease specific
- Status:
- In progress
- Consent restrictions:
- No restrictions
Associated Data Type | Procurement Timeframe |
---|---|
Clinical records | Immediate |
Followup records | 0 - 3 months |
Freezer temperature logs | Immediate |
National registries | > 6 months |
Primary care records | 0 - 3 months |
Treatment records | 0 - 3 months |
Male
Young child (2 - 6 years)
11 - 100 donors
Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
---|---|---|---|---|---|
DNA | -60°C to -85°C | N/A | Not applicable | 26 - 50% |
Osteosarcoma of bone (disorder)
Year Started: 1998
Specific paediatric solid tumour sample collection
- Access:
- Open to applicants
- Type:
- Disease specific
- Status:
- In progress
- Consent restrictions:
- No restrictions
Associated Data Type | Procurement Timeframe |
---|---|
Biomarker datasets | 0 - 3 months |
Clinical records | Immediate |
Followup records | 0 - 3 months |
Freezer temperature logs | Immediate |
National registries | > 6 months |
Pathology records | Immediate |
Primary care records | 0 - 3 months |
Treatment records | 0 - 3 months |
Male
Young child (2 - 6 years)
101 - 500 donors
Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
---|---|---|---|---|---|
DNA | -60°C to -85°C | N/A | Not applicable | 11 - 25% | |
Tissue specimen | Surgical procedure (procedure) | -60°C to -85°C | N/A | Affected | 26 - 50% |
Tissue specimen | Surgical procedure (procedure) | RT | Paraffin | Affected | 11 - 25% |
Langerhans cell histiocytosis (disorder)
Year Started: 1998
Specific paediatric solid tumour sample collection
- Access:
- Open to applicants
- Type:
- Disease specific
- Status:
- In progress
- Consent restrictions:
- No restrictions
Associated Data Type | Procurement Timeframe |
---|---|
Biomarker datasets | 0 - 3 months |
Clinical records | Immediate |
Followup records | 0 - 3 months |
Freezer temperature logs | Immediate |
National registries | > 6 months |
Pathology records | Immediate |
Primary care records | Immediate |
Treatment records | 0 - 3 months |
Male
Young child (2 - 6 years)
11 - 100 donors
Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
---|---|---|---|---|---|
DNA | -60°C to -85°C | N/A | Not applicable | 100% | |
Tissue specimen | Surgical procedure (procedure) | -60°C to -85°C | N/A | Affected | 11 - 25% |
Tissue specimen | Surgical procedure (procedure) | RT | Paraffin | Affected | 11 - 25% |
Nephroblastoma (disorder)
Year Started: 1998
Specific paediatric solid tumour sample collection
- Access:
- Open to applicants
- Type:
- Disease specific
- Status:
- In progress
- Consent restrictions:
- No restrictions
Associated Data Type | Procurement Timeframe |
---|---|
Biomarker datasets | 0 - 3 months |
Clinical records | Immediate |
Followup records | 0 - 3 months |
Freezer temperature logs | Immediate |
National registries | > 6 months |
Pathology records | Immediate |
Primary care records | 0 - 3 months |
Treatment records | 0 - 3 months |
Male
Young child (2 - 6 years)
1001 - 3000 donors
Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
---|---|---|---|---|---|
DNA | -60°C to -85°C | N/A | Not applicable | 26 - 50% | |
Tissue specimen | Surgical procedure (procedure) | -60°C to -85°C | N/A | Affected | 26 - 50% |
Tissue specimen | Surgical procedure (procedure) | RT | Paraffin | Affected | 26 - 50% |
Rhabdomyosarcoma (disorder)
Year Started: 1998
Specific paediatric solid tumour sample collection
- Access:
- Open to applicants
- Type:
- Disease specific
- Status:
- In progress
- Consent restrictions:
- No restrictions
Associated Data Type | Procurement Timeframe |
---|---|
Biomarker datasets | 0 - 3 months |
Clinical records | Immediate |
Followup records | 0 - 3 months |
Freezer temperature logs | Immediate |
National registries | > 6 months |
Pathology records | Immediate |
Primary care records | Immediate |
Treatment records | 0 - 3 months |
Male
Young child (2 - 6 years)
101 - 500 donors
Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
---|---|---|---|---|---|
DNA | -60°C to -85°C | N/A | Not applicable | 11 - 25% | |
Tissue specimen | Surgical procedure (procedure) | -60°C to -85°C | N/A | Affected | 26 - 50% |
Tissue specimen | Surgical procedure (procedure) | RT | Paraffin | Affected | 11 - 25% |
Medulloblastoma (disorder)
Year Started: 1998
Specific paediatric solid tumour sample collection
- Access:
- Open to applicants
- Type:
- Disease specific
- Status:
- In progress
- Consent restrictions:
- No restrictions
Associated Data Type | Procurement Timeframe |
---|---|
Biomarker datasets | Immediate |
Clinical records | Immediate |
Followup records | 0 - 3 months |
Freezer temperature logs | Immediate |
National registries | > 6 months |
Pathology records | Immediate |
Primary care records | 0 - 3 months |
Treatment records | 0 - 3 months |
Male
Child (6 - 12 years)
1 - 10 donors
Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
---|---|---|---|---|---|
DNA | -60°C to -85°C | N/A | Not applicable | 11 - 25% | |
Tissue specimen | Surgical procedure (procedure) | -60°C to -85°C | N/A | Affected | 26 - 50% |
Tissue specimen | Surgical procedure (procedure) | RT | Paraffin | Affected | 11 - 25% |
Glioma (disorder)
Year Started: 1998
Specific paediatric solid tumour sample collection
- Access:
- Open to applicants
- Type:
- Disease specific
- Status:
- In progress
- Consent restrictions:
- No restrictions
Associated Data Type | Procurement Timeframe |
---|---|
Biomarker datasets | 0 - 3 months |
Clinical records | Immediate |
Followup records | 0 - 3 months |
Freezer temperature logs | Immediate |
National registries | > 6 months |
Pathology records | Immediate |
Primary care records | Immediate |
Treatment records | 0 - 3 months |
Male
Child (6 - 12 years)
101 - 500 donors
Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
---|---|---|---|---|---|
DNA | -60°C to -85°C | N/A | Not applicable | 100% | |
Tissue specimen | Surgical procedure (procedure) | -60°C to -85°C | N/A | Affected | 75% -99% |
Tissue specimen | Surgical procedure (procedure) | RT | Paraffin | Affected | 100% |
Germinoma (morphologic abnormality)
Year Started: 1998
Specific paediatric solid tumour sample collection
- Access:
- Access restricted at present
- Type:
- Disease specific
- Status:
- In progress
- Consent restrictions:
- No restrictions
Associated Data Type | Procurement Timeframe |
---|---|
Biomarker datasets | 0 - 3 months |
Clinical records | Immediate |
Followup records | 0 - 3 months |
Freezer temperature logs | Immediate |
National registries | > 6 months |
Pathology records | Immediate |
Primary care records | Immediate |
Treatment records | 0 - 3 months |
Male
Child (6 - 12 years)
501 - 1000 donors
Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
---|---|---|---|---|---|
DNA | -60°C to -85°C | N/A | Not applicable | 100% | |
Tissue specimen | Surgical procedure (procedure) | -60°C to -85°C | N/A | Affected | 51 - 75% |
Tissue specimen | Surgical procedure (procedure) | RT | Paraffin | Affected | 26 - 50% |
Astrocytoma of brain (disorder)
Year Started: 1998
Specific paediatric solid tumour sample collection
- Access:
- Open to applicants
- Type:
- Disease specific
- Status:
- In progress
- Consent restrictions:
- No restrictions
Associated Data Type | Procurement Timeframe |
---|---|
Biomarker datasets | 0 - 3 months |
Clinical records | Immediate |
Followup records | 0 - 3 months |
Freezer temperature logs | Immediate |
National registries | > 6 months |
Pathology records | Immediate |
Primary care records | 0 - 3 months |
Treatment records | 0 - 3 months |
Male
Young child (2 - 6 years)
101 - 500 donors
Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
---|---|---|---|---|---|
DNA | -60°C to -85°C | N/A | Not applicable | 100% | |
Tissue specimen | Surgical procedure (procedure) | -60°C to -85°C | N/A | Affected | 0 - 10% |
Ependymoma (disorder)
Year Started: 1998
Specific paediatric solid tumour sample collection
- Access:
- Open to applicants
- Type:
- Disease specific
- Status:
- In progress
- Consent restrictions:
- No restrictions
Associated Data Type | Procurement Timeframe |
---|---|
Biomarker datasets | 3 - 6 months |
Clinical records | Immediate |
Followup records | 0 - 3 months |
Freezer temperature logs | Immediate |
National registries | > 6 months |
Pathology records | Immediate |
Primary care records | 0 - 3 months |
Treatment records | 0 - 3 months |
Male
Young child (2 - 6 years)
101 - 500 donors
Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
---|---|---|---|---|---|
DNA | -18°C to -35°C | N/A | Not applicable | 100% | |
Tissue specimen | Surgical procedure (procedure) | -60°C to -85°C | N/A | Affected | 26 - 50% |
Tissue specimen | Surgical procedure (procedure) | RT | Paraffin | Affected | 26 - 50% |