Motor neuron disease (disorder)

UK MND Collections (Cell lines) - patient samples

Year Started: 2003

The UK MND Collections (formerly known as the UK MND DNA Bank) was established to provide the international research community with a resource for research into motor neurone disease (MND). These samples are available for research into MND and associated conditions such as fronto-temporal dementia only. The Collections contain >3,000 biological samples and clinical information; as well as epidemiology data from 400 participants, including people with MND, controls and family members. The DNA Bank - whole genome DNA from over 3,000 blood samples and clinical information (divided into a minimum and extended dataset). The Cell Lines Collection - sub set of the DNA Bank samples as EBV-transformed lymphoblastoid cell lines and peripheral blood lymphocytes. The Epidemiology Collection - >200 patient and matched control blood samples with extensive environmental and lifestyle data (self-report questionnaires and telephone interviews).

Access:
Open to applicants
Type:
Disease specific
Status:
Completed
Collection point:
Multiple points in patient pathway
Consent restrictions:
No restrictions


Female

Adult (> 40 years)

501 - 1000 donors

Material Type Preservation Type Macroscopic Assessment % of Sample Set
Immortalized cell lines Liquid nitrogen Not applicable 100%


Male

Young adult (18 - 40 years)

11 - 100 donors

Material Type Preservation Type Macroscopic Assessment % of Sample Set
Immortalized cell lines Liquid nitrogen Not applicable 100%


Male

Adult (> 40 years)

501 - 1000 donors

Material Type Preservation Type Macroscopic Assessment % of Sample Set
Immortalized cell lines Liquid nitrogen Not applicable 100%


Female

Young adult (18 - 40 years)

11 - 100 donors

Material Type Preservation Type Macroscopic Assessment % of Sample Set
Immortalized cell lines Liquid nitrogen Not applicable 100%

Motor neuron disease (disorder)

UK MND Collections (Cell lines) - control samples

Year Started: 2003

The UK MND Collections (formerly known as the UK MND DNA Bank) was established to provide the international research community with a resource for research into motor neurone disease (MND). These samples are available for research into MND and associated conditions such as fronto-temporal dementia only. The Collections contain >3,000 biological samples and clinical information; as well as epidemiology data from 400 participants, including people with MND, controls and family members. The DNA Bank - whole genome DNA from over 3,000 blood samples and clinical information (divided into a minimum and extended dataset). The Cell Lines Collection - sub set of the DNA Bank samples as EBV-transformed lymphoblastoid cell lines and peripheral blood lymphocytes. The Epidemiology Collection - >200 patient and matched control blood samples with extensive environmental and lifestyle data (self-report questionnaires and telephone interviews).

Access:
Open to applicants
Type:
Disease specific
Status:
Completed
Collection point:
Multiple points in patient pathway
Consent restrictions:
No restrictions


Male

Adult (> 40 years)

101 - 500 donors

Material Type Preservation Type Macroscopic Assessment % of Sample Set
Immortalized cell lines Liquid nitrogen Not applicable 100%


Female

Young adult (18 - 40 years)

11 - 100 donors

Material Type Preservation Type Macroscopic Assessment % of Sample Set
Immortalized cell lines Liquid nitrogen Not applicable 100%


Female

Adult (> 40 years)

501 - 1000 donors

Material Type Preservation Type Macroscopic Assessment % of Sample Set
Immortalized cell lines Liquid nitrogen Not applicable 100%


Male

Young adult (18 - 40 years)

11 - 100 donors

Material Type Preservation Type Macroscopic Assessment % of Sample Set
Immortalized cell lines Liquid nitrogen Not applicable 100%

Motor neuron disease (disorder)

UK MND Collections (DNA) - control samples

Year Started: 2003

The UK MND Collections (formerly known as the UK MND DNA Bank) was established to provide the international research community with a resource for research into motor neurone disease (MND). These samples are available for research into MND and associated conditions such as fronto-temporal dementia only. The Collections contain >3,000 biological samples and clinical information; as well as epidemiology data from 400 participants, including people with MND, controls and family members. The DNA Bank - whole genome DNA from over 3,000 blood samples and clinical information (divided into a minimum and extended dataset). The Cell Lines Collection - sub set of the DNA Bank samples as EBV-transformed lymphoblastoid cell lines and peripheral blood lymphocytes. The Epidemiology Collection - >200 patient and matched control blood samples with extensive environmental and lifestyle data (self-report questionnaires and telephone interviews).

Access:
Open to applicants
Type:
Disease specific
Status:
Completed
Collection point:
Multiple points in patient pathway
Consent restrictions:
No restrictions


Male

Young adult (18 - 40 years)

11 - 100 donors

Material Type Preservation Type Macroscopic Assessment % of Sample Set
DNA -60 °C to -85 °C Not applicable 100%


Male

Adult (> 40 years)

501 - 1000 donors

Material Type Preservation Type Macroscopic Assessment % of Sample Set
DNA -60 °C to -85 °C Not applicable 100%


Female

Adult (> 40 years)

501 - 1000 donors

Material Type Preservation Type Macroscopic Assessment % of Sample Set
DNA -60 °C to -85 °C Not applicable 100%


Female

Young adult (18 - 40 years)

101 - 500 donors

Material Type Preservation Type Macroscopic Assessment % of Sample Set
DNA -60 °C to -85 °C Not applicable 100%

Motor neuron disease (disorder)

UK MND Collections (DNA) - patient samples

Year Started: 2003

The UK MND Collections (formerly known as the UK MND DNA Bank) was established to provide the international research community with a resource for research into motor neurone disease (MND). These samples are available for research into MND and associated conditions such as fronto-temporal dementia only. The Collections contain >3,000 biological samples and clinical information; as well as epidemiology data from 400 participants, including people with MND, controls and family members. The DNA Bank - whole genome DNA from over 3,000 blood samples and clinical information (divided into a minimum and extended dataset). The Cell Lines Collection - sub set of the DNA Bank samples as EBV-transformed lymphoblastoid cell lines and peripheral blood lymphocytes. The Epidemiology Collection - >200 patient and matched control blood samples with extensive environmental and lifestyle data (self-report questionnaires and telephone interviews).

Access:
Open to applicants
Type:
Disease specific
Status:
Completed
Collection point:
Multiple points in patient pathway
Consent restrictions:
No restrictions


Male

Young adult (18 - 40 years)

11 - 100 donors

Material Type Preservation Type Macroscopic Assessment % of Sample Set
DNA -60 °C to -85 °C Not applicable 100%


Female

Adult (> 40 years)

501 - 1000 donors

Material Type Preservation Type Macroscopic Assessment % of Sample Set
DNA -60 °C to -85 °C Not applicable 100%


Female

Young adult (18 - 40 years)

11 - 100 donors

Material Type Preservation Type Macroscopic Assessment % of Sample Set
DNA -60 °C to -85 °C Not applicable 100%


Male

Adult (> 40 years)

1001 - 3000 donors

Material Type Preservation Type Macroscopic Assessment % of Sample Set
DNA -60 °C to -85 °C Not applicable 100%