Fit and well (finding)
Exeter Ten Thousand (EXTEND)
Year Started: 2009
The Exeter Ten Thousand study was started in 2009 to collect genetic, biological, clinical and lifestyle information on 10,000 adult individuals in the Exeter region in order to establish a sampling framework from which participants can be selected on the basis of genotypic or phenotypic predisposition / protection factors. Samples are selected for further analysis or individuals can be recontacted for recruitment. Participants who join Exeter 10000 are living in a community setting and are usually ambulant and well but may have diagnosed with clinical conditions Access to samples or data must be requested through the Steering Committee, which meets once a month.
- Access:
- Open only through collaboration
- Type:
- Cross-sectional
- Status:
- In progress
- Consent restrictions:
- Other animal work restriction, Xenograft restriction
Associated Data Type | Procurement Timeframe |
---|---|
Biomarker datasets | 0 - 3 months |
Clinical records | 0 - 3 months |
Cold ischemic time | 0 - 3 months |
Followup records | 0 - 3 months |
Freezer temperature logs | 0 - 3 months |
Genomic datasets | 0 - 3 months |
Physiological/biochemical measurements | 0 - 3 months |
Primary care records | 0 - 3 months |
Quality indicators | 0 - 3 months |
Male
Young adult (18 - 40 years)
501 - 1000 donors
Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
---|---|---|---|---|---|
DNA | -60°C to -85°C | N/A | Not applicable | 75% -99% | |
Plasma | -60°C to -85°C | N/A | Not applicable | 75% -99% | |
Serum | -60°C to -85°C | N/A | Not applicable | 75% -99% | |
Urine | -60°C to -85°C | N/A | Not applicable | 75% -99% |
Male
Adult (> 40 years)
3001 - 5000 donors
Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
---|---|---|---|---|---|
DNA | -60°C to -85°C | N/A | Not applicable | 75% -99% | |
Plasma | -60°C to -85°C | N/A | Not applicable | 75% -99% | |
Serum | -60°C to -85°C | N/A | Not applicable | 75% -99% | |
Urine | -60°C to -85°C | N/A | Not applicable | 75% -99% |
Diabetes mellitus type 1 (disorder)
Diabetes Alliance for Research in England (DARE)
Year Started: 2009
The DARE study consists of samples from diabetic patients, both type 1 and type 2 in the South West peninsula area (roughly Devon and Cornwall), predominately within the Exeter area. Sample collected at point of contact and data collected over time. The DARE collection was run alongside our EXTEND collection, concentrating on diabetic patients. EXTEND patients were recruited as controls to the DARE collection, and DARE diabetics were recruited to the EXTEND collection. Therefore, the majority of patients in DARE will have samples held within EXTEND, however, if diabetes is the main focus of a request to the Exeter biobanks, samples and data will come from the DARE collection. Please see http://www.diabetesgenes.org/content/diabetes-alliance-research-england-dare-previously-known-exeter-research-alliance-extra-stud for more information
- Access:
- Open only through collaboration
- Type:
- Disease specific
- Status:
- Completed
- Consent restrictions:
- Other animal work restriction, Xenograft restriction
Associated Data Type | Procurement Timeframe |
---|---|
Biomarker datasets | 0 - 3 months |
Clinical records | 0 - 3 months |
Cold ischemic time | 0 - 3 months |
Followup records | 0 - 3 months |
Freezer temperature logs | 0 - 3 months |
Genomic datasets | 0 - 3 months |
Physiological/biochemical measurements | 0 - 3 months |
Primary care records | 0 - 3 months |
Quality indicators | 0 - 3 months |
Male
Young adult (18 - 40 years)
11 - 100 donors
Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
---|---|---|---|---|---|
DNA | -60°C to -85°C | N/A | Not applicable | 75% -99% | |
Plasma | -60°C to -85°C | N/A | Not applicable | 26 - 50% | |
Serum | -60°C to -85°C | N/A | Not applicable | 26 - 50% | |
Urine | -60°C to -85°C | N/A | Not applicable | 26 - 50% |
Male
Adult (> 40 years)
101 - 500 donors
Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
---|---|---|---|---|---|
DNA | -60°C to -85°C | N/A | Not applicable | 75% -99% | |
Plasma | -60°C to -85°C | N/A | Not applicable | 26 - 50% | |
Serum | -60°C to -85°C | N/A | Not applicable | 26 - 50% | |
Urine | -60°C to -85°C | N/A | Not applicable | 26 - 50% |
Diabetes mellitus type 2 (disorder)
Diabetes Alliance for Research in England (DARE)
Year Started: 2009
The DARE study consists of samples from diabetic patients, both type 1 and type 2 in the South West peninsula area (roughly Devon and Cornwall), predominately within the Exeter area. Sample collected at point of contact and data collected over time. The DARE collection was run alongside our EXTEND collection, concentrating on diabetic patients. EXTEND patients were recruited as controls to the DARE collection, and DARE diabetics were recruited to the EXTEND collection. Therefore, the majority of patients in DARE will have samples held within EXTEND, however, if diabetes is the main focus of a request to the Exeter biobanks, samples and data will come from the DARE collection. Please see http://www.diabetesgenes.org/content/diabetes-alliance-research-england-dare-previously-known-exeter-research-alliance-extra-stud for more information
- Access:
- Open only through collaboration
- Type:
- Disease specific
- Status:
- Completed
- Consent restrictions:
- Other animal work restriction, Xenograft restriction
Associated Data Type | Procurement Timeframe |
---|---|
Biomarker datasets | 0 - 3 months |
Clinical records | 0 - 3 months |
Cold ischemic time | 0 - 3 months |
Followup records | 0 - 3 months |
Freezer temperature logs | 0 - 3 months |
Genomic datasets | 0 - 3 months |
Physiological/biochemical measurements | 0 - 3 months |
Primary care records | 0 - 3 months |
Quality indicators | 0 - 3 months |
Male
Young adult (18 - 40 years)
11 - 100 donors
Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
---|---|---|---|---|---|
DNA | -60°C to -85°C | N/A | Not applicable | 75% -99% | |
Plasma | -60°C to -85°C | N/A | Not applicable | 26 - 50% | |
Serum | -60°C to -85°C | N/A | Not applicable | 26 - 50% | |
Urine | -60°C to -85°C | N/A | Not applicable | 26 - 50% |
Male
Adult (> 40 years)
3001 - 5000 donors
Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
---|---|---|---|---|---|
DNA | -60°C to -85°C | N/A | Not applicable | 75% -99% | |
Plasma | -60°C to -85°C | N/A | Not applicable | 26 - 50% | |
Serum | -60°C to -85°C | N/A | Not applicable | 26 - 50% | |
Urine | -60°C to -85°C | N/A | Not applicable | 26 - 50% |