Jakob-Creutzfeldt disease (disorder)

The National CJD Research & Surveillance Unit BioResource

Year Started: 1996

This collection contains CSF, blood and urine from patients with sporadic and variant CJD as well as genetic forms of prion disease



Access:
Open to applicants
Type:
Disease specific
Status:
In progress
Consent restrictions:
Commercial restriction


Associated Data Type Procurement Timeframe
Biomarker datasets 0 - 3 months
Imaging data 3 - 6 months
Pathology records 3 - 6 months


Female

Adult (> 40 years)

11 - 100 donors

Material Type Extraction Procedure Storage Temperature Preservation Type Macroscopic Assessment % of Sample Set
Whole blood -60°C to -85°C N/A Affected 11 - 25%
Plasma -60°C to -85°C N/A Affected 11 - 25%
Urine -60°C to -85°C N/A Affected 0 - 10%


Male

Adult (> 40 years)

11 - 100 donors

Material Type Extraction Procedure Storage Temperature Preservation Type Macroscopic Assessment % of Sample Set
Plasma -60°C to -85°C N/A Affected 51 - 75%
Urine -60°C to -85°C N/A Affected 51 - 75%
Whole blood -60°C to -85°C N/A Affected 51 - 75%

Jakob-Creutzfeldt disease (disorder)

The National CJD Research & Surveillance Unit BioResource

Year Started: 1996

Cerebrospinal fluid



Access:
Open to applicants
Type:
Disease specific
Status:
In progress
Consent restrictions:
Commercial restriction


Associated Data Type Procurement Timeframe
Biomarker datasets 0 - 3 months
Clinical records 0 - 3 months
Imaging data 0 - 3 months
Pathology records 0 - 3 months


Male

Adult (> 40 years)

101 - 500 donors

Material Type Extraction Procedure Storage Temperature Preservation Type Macroscopic Assessment % of Sample Set
Cerebrospinal fluid Under -85°C N/A Affected 51 - 75%


Female

Adult (> 40 years)

101 - 500 donors

Material Type Extraction Procedure Storage Temperature Preservation Type Macroscopic Assessment % of Sample Set
Cerebrospinal fluid Under -85°C Affected 51 - 75%