Nephrotic syndrome (disorder)
NephroS: The National Study of Nephrotic Syndrome
Year Started: 2009
Adults and Children with Idiopathic Nephrotic Syndrome
- Access:
- Open only through collaboration
- Type:
- Cohort
- Status:
- In progress
- Consent restrictions:
- Other animal work restriction, Xenograft restriction
| Associated Data Type | Procurement Timeframe |
|---|---|
| Clinical records | 0 - 3 months |
| Followup records | 0 - 3 months |
| Genealogical records | 0 - 3 months |
| National registries | 0 - 3 months |
| Pathology records | 0 - 3 months |
| Physiological/biochemical measurements | 0 - 3 months |
| Treatment records | 0 - 3 months |
| Donor Ethnicity | 0 - 3 months |
Female
Adult (> 40 years)
101 - 500 donors
| Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
|---|---|---|---|---|---|
| Whole blood | -60°C to -85°C | Not applicable | 51 - 75% | ||
| Plasma | -60°C to -85°C | Not applicable | 51 - 75% | ||
| DNA | -60°C to -85°C | Not applicable | 51 - 75% |
Male
Adult (> 40 years)
101 - 500 donors
| Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
|---|---|---|---|---|---|
| Whole blood | -60°C to -85°C | Not applicable | 51 - 75% | ||
| Plasma | -60°C to -85°C | Not applicable | 51 - 75% | ||
| DNA | -60°C to -85°C | Not applicable | 51 - 75% |