Nephrotic syndrome (disorder)
NephroS: The National Study of Nephrotic Syndrome
Year Started: 2009
Adults and Children with Idiopathic Nephrotic Syndrome
- Access:
- Open only through collaboration
- Type:
- Cohort
- Status:
- In progress
- Consent restrictions:
- Other animal work restriction, Xenograft restriction
Associated Data Type | Procurement Timeframe |
---|---|
Clinical records | 0 - 3 months |
Followup records | 0 - 3 months |
Genealogical records | 0 - 3 months |
National registries | 0 - 3 months |
Pathology records | 0 - 3 months |
Physiological/biochemical measurements | 0 - 3 months |
Treatment records | 0 - 3 months |
Donor Ethnicity | 0 - 3 months |
Female
Young child (2 - 6 years)
11 - 100 donors
Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
---|---|---|---|---|---|
Whole blood | -60°C to -85°C | Not applicable | 51 - 75% | ||
Plasma | -60°C to -85°C | Not applicable | 51 - 75% | ||
DNA | -60°C to -85°C | Not applicable | 51 - 75% |
Male
Young child (2 - 6 years)
1 - 10 donors
Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
---|---|---|---|---|---|
Whole blood | -60°C to -85°C | Not applicable | 51 - 75% | ||
Plasma | -60°C to -85°C | Not applicable | 51 - 75% | ||
DNA | -60°C to -85°C | Not applicable | 51 - 75% |