Chronic fatigue syndrome (disorder)

The UK ME/CFS Biobank

Year Started: 2012

The UK ME/CFS Biobank is a unique and dedicated repository for ME/CFS research, open to use by external researchers to access samples and clinical data for ethically-approved studies. Samples available include ME/CFS Cases (meeting the Canadian Consensus or CDC-1994 criteria), neurologist-diagnosed Multiple Sclerosis Controls and Healthy Controls.



Access:
Open to applicants
Type:
Disease specific
Status:
In progress
Consent restrictions:
No restrictions


Associated Data Type Procurement Timeframe
Clinical records Immediate
Followup records Immediate
Survey data Immediate


Male

Adult (> 40 years)

11 - 100 donors

Material Type Extraction Procedure Storage Temperature Preservation Type Macroscopic Assessment % of Sample Set
Peripheral blood mononuclear cells (PBMC) Liquid nitrogen liquid phase N/A Not applicable 0 - 10%
Plasma Liquid nitrogen liquid phase N/A Not applicable 0 - 10%
RNA -60°C to -85°C N/A Not applicable 11 - 25%
Serum Liquid nitrogen liquid phase N/A Not applicable 11 - 25%
Whole blood Liquid nitrogen liquid phase N/A Not applicable 0 - 10%


Male

Young adult (18 - 40 years)

11 - 100 donors

Material Type Extraction Procedure Storage Temperature Preservation Type Macroscopic Assessment % of Sample Set
Peripheral blood mononuclear cells (PBMC) Liquid nitrogen liquid phase N/A Not applicable 0 - 10%
Plasma Liquid nitrogen liquid phase N/A Not applicable 0 - 10%
RNA -60°C to -85°C N/A Not applicable 0 - 10%
Serum Liquid nitrogen liquid phase N/A Not applicable 0 - 10%
Whole blood Liquid nitrogen liquid phase N/A Not applicable 0 - 10%