GoSHARE (Genetics of the Scottish Health Research Register)

The Scottish Health Research Register SHARE adopts an approach which asks the public to consent to their data held in NHS databases to be used to determine their suitability for research projects. Additionally participants can consent for spare blood, left after routine venepuncture to be stored for future research studies. This has been implemented in tayside and Grampian with over 50,000 blood samples intercepted by March 2017. Anyone over the age of 11 years in Scotland can participate. Participants are approached through a range of methods including directly at out-patient clinics and GP practices, leaflets with hospital letters and personal email from employers. SHARE has recruited around 150,000 people, with over 95% of all individuals providing consent for the use of spare blood. SHARE has demonstrated that it can quickly and efficiently recruit to studies. In addition it can be used to administer questionnaire studies by email and recruit to patient and public involvement groups. SHARE continues to steadily recruit with the ambition of eventually achieving 1,000,000 people in Scotland. We are steadily extending the datasets we use for identifying participants. We are adding a mobile APP which will facilitate dissemination about research and allow the collection of physiological and activity data if desired. We anticipate SHARE will soon become the main source of health research recruitment in Scotland. Cohort description paper: PMID: 28148535

Services

  • Ability to recontact
  • Access to the full pathology archive
  • Data analytics
  • Digital imaging
  • Nucleic acid extraction

Contact Information

Email:
goshare@dundee.ac.uk
Address:

Ninewells Hospital and Medical School
Dundee
Angus
DD1 9SY
UK

Annual Statistics

Year Access Requests Received Access Requests Approved
Internal External Commercial Internal External Commercial
2015 N/A N/A N/A N/A N/A N/A
2016 N/A N/A N/A N/A N/A N/A
2017 N/A N/A N/A N/A N/A N/A
2018 N/A N/A N/A N/A N/A N/A
2019 N/A N/A N/A N/A N/A N/A