Northern Ireland Motor Neurone Disease Biobank

This biobank aims to investigate the potential causes and mechanisms of neural degeneration in patients with Motor Neurone Disease (MND). We will do this by collecting blood and urine samples from patients with MND, some disorders with similar clinical characteristics (e.g Spinal-bulbar muscular atrophy) and healthy controls in Northern Ireland. Study participants may elect to provide optional muscle, skin and cerebrospinal fluid samples.

Existing samples:

  • Motor neuron disease (disorder)

Contact Information

Email:
s.duguez@ulster.ac.uk
Address:

Northern Ireland Centre for Stratified Medicine
C-TRIC, Altnagelvin Hospital Campus
Glenshane Road
Derry
Londonderry
BT47 6SB
Northern Ireland

Last Updated: 12/18/2020


Annual Statistics

Year Access Requests Received Access Requests Approved
Internal External Commercial Internal External Commercial
2015 N/A N/A N/A N/A N/A N/A
2016 N/A N/A N/A N/A N/A N/A
2017 N/A N/A N/A N/A N/A N/A
2018 N/A N/A N/A N/A N/A N/A
2019 N/A N/A N/A N/A N/A N/A
2020 N/A N/A N/A N/A N/A N/A
2021 N/A N/A N/A N/A N/A N/A
2022 N/A N/A N/A N/A N/A N/A
2023 N/A N/A N/A N/A N/A N/A
2024 N/A N/A N/A N/A N/A N/A