UK ME/CFS Biobank

Participants: Over 650 participants are included in the study, including ME/CFS participants diagnosed by a physician and compliant with CDC ’94 (Fukuda) and Canadian Consensus Criteria (CCC), with case definition compliance available for four other commonly-used criteria. Healthy and MS matched controls are also available. • Mild and Moderate ME/CFS • Severe (Home-Bound) ME/CFS • Multiple Sclerosis • Healthy Controls Samples Available: Over 32,000 aliquots available. • Whole Blood • Serum • Plasma • RBCs • PBMCs (Sodium Heparin and K2 EDTA) • Blood for RNA Extraction (PaxGENE) Associated Data Available: • Baseline Standard Laboratory Tests to exclude comorbidity causes of fatigue • In-person clinical assessment data • Detailed Symptoms Assessments • Demographic information • Standardised instruments of Fatigue Severity and Functional Impairment

Services

  • Ability to recontact
  • Data analytics

Existing samples:

  • Chronic fatigue syndrome (disorder)

Bespoke collection capabilities:

  • Chronic fatigue syndrome (disorder)

Contact Information

Email:
mecfsbiobank@lshtm.ac.uk
Address:

CureME - c/o Mrs Caroline Kingdon
Faculty of Infectious and Tropical Diseases
London School of Hygiene & Tropical Medicine
Keppel Street
 London
Greater London
WC1E 7HT
England

Last Updated: 02/19/2019


Annual Statistics

Year Access Requests Received Access Requests Approved
Internal External Commercial Internal External Commercial
2015 N/A N/A N/A N/A N/A N/A
2016 N/A N/A N/A N/A N/A N/A
2017 1 3 N/A 1 3 N/A
2018 3 7 N/A 3 4 N/A
2019 1 4 N/A 1 3 N/A
2020 N/A N/A N/A N/A N/A N/A
2021 N/A N/A N/A N/A N/A N/A
2022 N/A N/A N/A N/A N/A N/A
2023 N/A N/A N/A N/A N/A N/A
2024 N/A N/A N/A N/A N/A N/A