Motor neuron disease (disorder)
Northern Ireland Motor Neurone Disease Biobank
Year Started: 2021
This biobank aims to investigate the potential causes and mechanisms of neural degeneration in patients with Motor Neurone Disease (MND). We will do this by collecting blood and urine samples from patients with MND, some disorders with similar clinical characteristics (e.g Spinal-bulbar muscular atrophy) and healthy controls in Northern Ireland. Study participants may elect to provide optional muscle, skin and cerebrospinal fluid samples.
- Access:
- Open to applicants
- Type:
- Disease specific
- Status:
- In progress
- Consent restrictions:
- Commercial restriction, Xenograft restriction
| Associated Data Type | Procurement Timeframe |
|---|---|
| Clinical records | 0 - 3 months |
Undifferentiated
Adult (> 40 years)
11 - 100 donors
| Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
|---|---|---|---|---|---|
| Buffy coat | -60°C to -85°C | Not applicable | 0 - 10% |
Undifferentiated
Adult (> 40 years)
11 - 100 donors
| Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
|---|---|---|---|---|---|
| Plasma | -60°C to -85°C | Not applicable | 0 - 10% |