Chronic fatigue syndrome (disorder)
The UK ME/CFS Biobank
Year Started: 2012
The UK ME/CFS Biobank is a unique and dedicated repository for ME/CFS research, open to use by external researchers to access samples and clinical data for ethically-approved studies. Samples available include ME/CFS Cases (meeting the Canadian Consensus or CDC-1994 criteria), neurologist-diagnosed Multiple Sclerosis Controls and Healthy Controls.
- Access:
- Open to applicants
- Type:
- Disease specific
- Status:
- In progress
- Consent restrictions:
- No restrictions
Associated Data Type | Procurement Timeframe |
---|---|
Clinical records | Immediate |
Followup records | Immediate |
Survey data | Immediate |
Male
Adult (> 40 years)
11 - 100 donors
Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
---|---|---|---|---|---|
Peripheral blood mononuclear cells (PBMC) | Liquid nitrogen liquid phase | N/A | Not applicable | 0 - 10% | |
Plasma | Liquid nitrogen liquid phase | N/A | Not applicable | 0 - 10% | |
RNA | -60°C to -85°C | N/A | Not applicable | 11 - 25% | |
Serum | Liquid nitrogen liquid phase | N/A | Not applicable | 11 - 25% | |
Whole blood | Liquid nitrogen liquid phase | N/A | Not applicable | 0 - 10% |
Female
Adult (> 40 years)
101 - 500 donors
Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
---|---|---|---|---|---|
Peripheral blood mononuclear cells (PBMC) | Liquid nitrogen liquid phase | N/A | Not applicable | 0 - 10% | |
Plasma | Liquid nitrogen liquid phase | N/A | Not applicable | 0 - 10% | |
RNA | -60°C to -85°C | N/A | Not applicable | 0 - 10% | |
Serum | Liquid nitrogen liquid phase | N/A | Not applicable | 0 - 10% | |
Whole blood | Liquid nitrogen liquid phase | N/A | Not applicable | 0 - 10% |
Female
Young adult (18 - 40 years)
101 - 500 donors
Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
---|---|---|---|---|---|
Peripheral blood mononuclear cells (PBMC) | Liquid nitrogen liquid phase | N/A | Not applicable | 0 - 10% | |
Plasma | Liquid nitrogen liquid phase | N/A | Not applicable | 0 - 10% | |
RNA | -60°C to -85°C | N/A | Not applicable | 0 - 10% | |
Serum | Liquid nitrogen liquid phase | N/A | Not applicable | 0 - 10% | |
Whole blood | Liquid nitrogen liquid phase | N/A | Not applicable | 0 - 10% |
Male
Young adult (18 - 40 years)
11 - 100 donors
Material Type | Extraction Procedure | Storage Temperature | Preservation Type | Macroscopic Assessment | % of Sample Set |
---|---|---|---|---|---|
Peripheral blood mononuclear cells (PBMC) | Liquid nitrogen liquid phase | N/A | Not applicable | 0 - 10% | |
Plasma | Liquid nitrogen liquid phase | N/A | Not applicable | 0 - 10% | |
RNA | -60°C to -85°C | N/A | Not applicable | 0 - 10% | |
Serum | Liquid nitrogen liquid phase | N/A | Not applicable | 0 - 10% | |
Whole blood | Liquid nitrogen liquid phase | N/A | Not applicable | 0 - 10% |